Beyond Digital: Building Connection, Loyalty, and Advocacy in Rare Disease

Gene Zlotniko, Senior Director, Consumer Marketing, Rare Disease, Amgen

Courtney Seal, Director, Senior Product Manager, HCP Digital Marketing, Amgen

In rare disease, digital innovation and data can raise awareness — but real impact happens when we move beyond that. Patients often face years of uncertainty, becoming their own advocates and even educating their doctors, especially in rural or underserved areas. This session explores how empathy, collaboration, and authentic engagement can transform patient journeys, strengthening trust and driving lasting advocacy.

• How media and data can accelerate awareness — but why empathy and accessibility ultimately shorten the path to diagnosis

• Empowering shared decision-making by aligning messaging across patients, caregivers, and HCPs

• Engaging directly with patients through market research and insight gathering to listen, learn, and lead — identifying how to best support them with the right resources

• Partnering with advocacy groups to create authentic patient stories and community-driven content

• Balancing technology with humanity: blending digital innovation with emotional connection to drive loyalty and advocacy

Use this intimate setting to discuss the challenges women in the pharma industry face and celebrate your successes as a group! You’ll come away feeling inspired, supported, and ready to take on your next big idea. This session is only open to female pharma executives. Space is limited.